SynGAP10 weekly 10 minute updates on SYNGAP1 (video)

1.9

TOP 2%

Creator:

Syngap Research Fund, 501(c)(3)

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Podcast data

Created By Syngap Research Fund, 501(c)(3)

Podcast Status active

Started 13/03/2021

Latest Episode 05/10/2022

Release Period Episodic

Episodes 101

Partner Reviews 0

Language English

Frequency 196

Average Length 12 minutes and 1 seconds

Country United States

Global Rank TOP 2%

Description

Over 900 families are caring for a loved one with the rare disease ”SynGAP” resulting from a variant of the SYNGAP1 gene. This 10 minute weekly podcast is for them. A quick summary of the latest news in the space. The host is Mike Graglia, co-founder & managing director of the SynGAP Research Fund. SRF is a parent-led, all volunteer public charity in the US that strives to accelerate research into treatments for SYNGAP1 so that we can help our loved ones in a timeframe that matters. Learn more at https://www.syngapresearchfund.org/
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Episodes
- #257379 - SRF Supported Publication on NET, Siblings, Webinars, Frog Video, Clinical Trial Questions… #S10e101
  
  2 years ago
- #257380 - 💯Episode 100! Survey, GI, Biorepository, Press, PG, ASO Training, Sprint3 in 3 weeks!!! #S10e100
  
  2 years ago
- #257381 - 🌞🐒🐸SYNGAP1 is HOT: Gene Therapies, Monkey, COMBINEDBrain, Biorepository, Frazier, Frogs, 1,251 patients & studies #S10e99
  
  2 years ago
- #257382 - Building the SYNGAP1 SRF House - using the Milken Fastercures Research Partnership Maturity Model - #S10e98
  
  2 years ago
- #257383 - Talking to families with 2 year olds, 3 Webinars not to miss, and Sprint4Syngap, Stoke & Praxis Updates, GG Next 2023 Report - #S10e97
  
  2 years ago
Reviews
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SynGAP10 weekly 10 minute updates on SYNGAP1 (video)

SynGAP10 weekly 10 minute updates on SYNGAP1 (video)

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Podcast data

Description

Agent Outreach

Episodes

#257379 - SRF Supported Publication on NET, Siblings, Webinars, Frog Video, Clinical Trial Questions… #S10e101

#257380 - 💯Episode 100! Survey, GI, Biorepository, Press, PG, ASO Training, Sprint3 in 3 weeks!!! #S10e100

#257381 - 🌞🐒🐸SYNGAP1 is HOT: Gene Therapies, Monkey, COMBINEDBrain, Biorepository, Frazier, Frogs, 1,251 patients & studies #S10e99

#257382 - Building the SYNGAP1 SRF House - using the Milken Fastercures Research Partnership Maturity Model - #S10e98

#257383 - Talking to families with 2 year olds, 3 Webinars not to miss, and Sprint4Syngap, Stoke & Praxis Updates, GG Next 2023 Report - #S10e97

Reviews

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