SynGAP Stories

TOP 1%

Creator:

Syngap Research Fund, 501(c)(3)

Parenting
Kids & Family

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Podcast data

Created By Syngap Research Fund, 501(c)(3)

Podcast Status active

Started 24/01/2023

Latest Episode 18/04/2023

Release Period Episodic

Episodes 7

Partner Reviews 0

Language English

Frequency 335

Average Length 32 minutes and 34 seconds

Country United States

Global Rank TOP 1%

Description

SYNGAP1 is a rare disease that affects Ashley Frye's son Nathan. Fewer than 1,200 patients have been diagnosed as of January, 2023. There is no treatment. There is no cure. In each episode of SynGAP Stories, Ashley will chat with SynGap parents, volunteers, caregivers, researchers and partners about their journey with SYNGAP1 in their lives. Their joys and successes, as well as heartaches, will be discussed in this heart-warming series as we support the SynGap community.
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Episodes
- #522275 - It's Ashley's turn, as she talks about her beginnings of volunteering for SRF and what she's working on now! Pickleball, anyone?
  
  2 years ago
- #522276 - How Can a Service Dog Help Your SYNGAP1 or Other Rare Disease Child? Listen as Cecilia Anastos Chats with Ashley.
  
  2 years ago
- #522277 - Kali Worth, SYNGAP1 Mom to Kailyn (Kai) is Ashley's guest.
  
  2 years ago
- #522278 - Ashley's Guest - SRF Community Activation Leader Corey Baysden
  
  2 years ago
- #522279 - Ashley talks to SRF Co-founder Mike Graglia
  
  2 years ago
Reviews
- There are no reviews yet
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SynGAP Stories

SynGAP Stories

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Podcast data

Description

Agent Outreach

Episodes

#522275 - It's Ashley's turn, as she talks about her beginnings of volunteering for SRF and what she's working on now! Pickleball, anyone?

#522276 - How Can a Service Dog Help Your SYNGAP1 or Other Rare Disease Child? Listen as Cecilia Anastos Chats with Ashley.

#522277 - Kali Worth, SYNGAP1 Mom to Kailyn (Kai) is Ashley's guest.

#522278 - Ashley's Guest - SRF Community Activation Leader Corey Baysden

#522279 - Ashley talks to SRF Co-founder Mike Graglia

Reviews

Podcasts like this

The Children's Book Podcast

The Children's Book Podcast

First Name Basis Podcast

First Name Basis Podcast

Celebrate Kids Podcast with Dr. Kathy

Celebrate Kids Podcast with Dr. Kathy

The PedsDocTalk Podcast

The PedsDocTalk Podcast

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