On Rare

1.4

TOP 10%

Creator:

BridgeBio Pharma

Medicine
Health & Fitness
Life Sciences
Medicinee
Education
Science

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Podcast data

Created By BridgeBio Pharma

Podcast Status active

Started 20/02/2022

Latest Episode 07/04/2023

Release Period Episodic

Episodes 15

Partner Reviews 0

Language English

Frequency 828

Average Length 37 minutes and 2 seconds

Country United States

Global Rank TOP 10%

Description

Join us each month to listen and learn from the experts – people living with rare conditions. We’ll discuss the challenges and triumphs of life with a rare genetic condition and hear from scientists working to develop new medicines. Honest conversations with the rare community, led by the patient advocacy team at BridgeBio. Subscribe below to catch each episode as it goes live.
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Episodes
- #453592 - “You can brush it off or you can speak up for yourself” Kristen has been advocating for herself and others who live with achondroplasia since she was six years old.
  
  2 years ago
- #453593 - “When life gives you lemons, make lemon gelato!” Brent is disabled by PKAN, a rare neurodegenerative disease, yet supported by his family he is making many of his dreams come true.
  
  2 years ago
- #453594 - “I learned to meditate.” Holly and Beth learned to take care of themselves while supporting their families through their husbands’ ALS diagnoses.
  
  2 years ago
- #453595 - “They would go to see their doctors and tell them everything was fine, but everything was not fine.” Carl and Chris struggled in their own ways to accept their ALS diagnosis.
  
  2 years ago
- #453596 - “With CAH, you’re always planning and worried.” Jihan’s two daughters are living with congenital adrenal hyperplasia (CAH).
  
  2 years ago
Reviews
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On Rare

On Rare

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Podcast data

Description

Agent Outreach

Episodes

#453592 - “You can brush it off or you can speak up for yourself” Kristen has been advocating for herself and others who live with achondroplasia since she was six years old.

#453593 - “When life gives you lemons, make lemon gelato!” Brent is disabled by PKAN, a rare neurodegenerative disease, yet supported by his family he is making many of his dreams come true.

#453594 - “I learned to meditate.” Holly and Beth learned to take care of themselves while supporting their families through their husbands’ ALS diagnoses.

#453595 - “They would go to see their doctors and tell them everything was fine, but everything was not fine.” Carl and Chris struggled in their own ways to accept their ALS diagnosis.

#453596 - “With CAH, you’re always planning and worried.” Jihan’s two daughters are living with congenital adrenal hyperplasia (CAH).

Reviews

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